Key Points
  • Explore how to deliver timely, sustainable, high quality services to avoid high cost crisis interventions and hospital admissions
  • Local and national perspectives on strategic participation
  • Working in partnership with all stakeholders to improve outcomes of young disabled people and their families


Overview
The conference will be chaired by Amanda Batten, Chief Executive, Contact, the charity for families with disabled children, and Chair, Disabled Children’s Partnership, and a representative from the FLARE Team, Council for Disabled Children

Confirmed speakers:

  • Amanda Batten, Chief Executive, Contact, the charity for families with disabled children and Chair, Disabled Children’s Partnership
  • Representative from FLARE, Council for Disabled Children
  • Paul Crawte, Head of Young People’s Strategy, KIDS
  • Sarah Goff, Development Manager, Ann Craft Trust and Co-Chair, National Working Group on Safeguarding Disabled Children (NWGSDC)
  • Dr Marguerite Hoerger, Behaviour Analyst and Senior Lecturer, Bangor University and Board Member, UK Society for Behaviour Analysis
  • Stephen Kingdom, Campaign Manager, Disabled Children’s Partnership
  • Janet Leach, Head of Service, Joint Service for Disabled Children, London Borough of Enfield
  • David Miller, Development and Impact Manager, NSPCC and Co-Chair, National Working Group on Safeguarding Disabled Children (NWGSDC)
  • Kay Moore, Steering Group Member, National Network of Parent Carer Forums (NNPCF)
  • Dr Arvind Nagra, Consultant Paediatric Nephrologist and Clinical Lead for Transition, Southampton Children’s Hospital
  • Jane Seymour, Service Manager, SEN and Disabled Children’s Service, West Berkshire Council

“The gap in health and social care services in England today means that families face enormous difficulties in accessing even the most basic support. There simply isn’t awareness of the challenges faced by disabled children, young people and their families.”

Amanda Batten, Chair of the Disabled Children’s Partnership

Westminster Insight’s national conference will explore how services for disabled children can be improved against the backdrop of austerity, increasing demand and young people with ever more complex needs.

The number of disabled children in the UK has increased by 33% over the past 10 years to over 1 million. In 2018, the Disabled Children’s Partnership published economic research showing a £1.5 billion funding gap for services needed by disabled children.

Providing services to disabled children, at the point they need it, has the potential to significantly reduce the number of families reaching breaking point and the need for crisis interventions and long-term costs.

Join with colleagues from local authorities, health and the voluntary and community sector to hear national and local perspectives on how to improve outcomes for disabled young people and families in your community.

Sessions will include:

  • An update from the Disabled Children’s Partnership national campaign for improved health and social care for disabled children, young people and their families
  • Latest developments on the national programme to support the strategic participation of young disabled people
  • Developing effective partnerships - working together to put the needs of disabled children and young people first
  • Empowering parents in decision making at local, regional and national level
  • Latest guidance and best practice on how to manage challenging behaviour and safeguarding disabled young people from harm and abuse
  • Supporting the transition from children’s to adult’s services

Agenda
Start

09:20 - 09:50
Registration, Coffee and Networking

 

09:50 - 10:00
Chair’s Opening Remarks

 

Speakers

Amanda Batten Chief Executive, Contact, the charity for families with disabled children and Chair, Disabled Children’s Partnership

Read profile

Representative FLARE, Council for Disabled Children

Read profile


10:00 - 10:20
Secret Life of Us campaign – A Five Step Plan to Address the Growing Crisis in Health and Social Care for Disabled Children

 
The Disabled Children’s Partnership is a major coalition of more than 60 organisations campaigning for improved health and social care for disabled children, young people and their families.

This session will provide an update on the DCP’s campaign to raise awareness of the challenges families with disabled children face and for Government to address the lack of services; improve the quality and access to services; and ensure professionals communicate with each other and work together.

Speakers

Stephen Kingdom Campaign Manager, Disabled Children’s Partnership

Read profile


10:20 - 10:30
Questions and Discussion

 

10:30 - 10:50
Delivering Sustainable Services Locally - A Local Authority Perspective

 
  • Overcoming the challenges of the impact of austerity, the increasing needs of disabled children and raised expectations of families
  • Working in partnership
  • Sharing learning from the London SEND Regional Network

Speakers

Janet Leach Head of Service, Joint Service for Disabled Children, London Borough of Enfield

Read profile


10:50 - 11:00
Questions and Discussion

 

11:00 - 11:20
Driving Improvement and Strengthening Services through Multi-Agency Working

 
  • Improving outcomes with a leadership culture of challenge and support
  • Accessibility of services and ensuring families get early help
  • Supporting the changing needs of disabled children and young people
  • Emotional Health Academy, Employability, Exclusions Project

Speakers

Jane Seymour Service Manager, SEN and Disabled Children’s Service, West Berkshire Council

Read profile


11:20 - 11:30
Questions and Discussion

 

11:30 - 12:00
Tea and Coffee

 

12:00 - 12:20
An Update on the National Programme – Supporting the Strategic Participation of Young Disabled People

 
  • Practical solutions to overcoming the barriers to effective participation:

    - Strategies to drive the agenda locally
    - Building local networks
    - Utilising technology to address resourcing issues
  • Top tips for making participation work and issues to consider when incorporating participation into your practice
  • Developing new synergised approaches that enhance both young disabled people's and parent carer participation

Speakers

Paul Crawte Head of Young People’s Strategy, KIDS

Read profile


12:20 - 12:40
Supporting Parent Carer Participation at a Local, Regional and National Level

 
  • What strategies work to empower parents in decision making?
  • What doesn’t work and how can we build on experience to improve parent carer participation?
  • Sharing successes of innovative participation practice

Speakers

Kay Moore Steering Group Member, National Network of Parent Carer Forums (NNPCF)

Read profile


12:40 - 13:00
Questions and Discussion

 

13:00 - 14:00
Networking Lunch

 

14:00 - 14:30
Implementing Transition Care Locally and Nationally Using the ‘Ready Steady Go’ Programme

 
  • Empowering young people to manage their healthcare
  • How we developed and disseminated resources
  • Meeting the medical, psychosocial and vocational needs of disabled young people

Speakers

Dr Arvind Nagra Consultant Paediatric Nephrologist and Clinical Lead for Transition, Southampton Children’s Hospital

Read profile


14:30 - 14:40
Questions and Discussion

 

14:40 - 15:00
Understanding and Managing Challenging Behaviour

 
  • Identifying the reasons and purposes of challenging behaviour
  • Developing a flexible and personalised behaviour support plan
  • Supporting parents to cope and manage behaviour that challlenges

Speakers

Dr Marguerite Hoerger Behaviour Analyst and Senior Lecturer, Bangor University and Board Member, UK Society for Behaviour Analysis

Read profile


15:00 - 15:10
Questions and Discussion

 

15:10 - 15:40
Safeguarding Disabled Children

 
  • Identifying additional risks and barriers to identifying harm and abuse for disabled children
  • Working with all stakeholders to overcome the barriers to keeping disabled children and young people safe
  • Examples of creative and innovative child-centred practice
  • Signposting to resources designed to empower children and prevent abuse

Speakers

David Miller Development and Impact Manager, NSPCC and Co-Chair, National Working Group on Safeguarding Disabled Children (NWGSDC)

Read profile

Sarah Goff Development Manager, Ann Craft Trust and Co-Chair, National Working Group on Safeguarding Disabled Children (NWGSDC)

Read profile


15:40 - 15:50
Questions and Discussion

 

15:50 - 16:00
Chair's Close of Conference

 

End

Speakers

Representative FLARE, Council for Disabled Children

Read profile

Amanda Batten Chief Executive, Contact, the charity for families with disabled children and Chair, Disabled Children’s Partnership

Read profile

Paul Crawte Head of Young People’s Strategy, KIDS

Read profile

Sarah Goff Development Manager, Ann Craft Trust and Co-Chair, National Working Group on Safeguarding Disabled Children (NWGSDC)

Read profile

Dr Marguerite Hoerger Behaviour Analyst and Senior Lecturer, Bangor University and Board Member, UK Society for Behaviour Analysis

Read profile

Stephen Kingdom Campaign Manager, Disabled Children’s Partnership

Read profile

Janet Leach Head of Service, Joint Service for Disabled Children, London Borough of Enfield

Read profile

David Miller Development and Impact Manager, NSPCC and Co-Chair, National Working Group on Safeguarding Disabled Children (NWGSDC)

Read profile

Kay Moore Steering Group Member, National Network of Parent Carer Forums (NNPCF)

Read profile

Dr Arvind Nagra Consultant Paediatric Nephrologist and Clinical Lead for Transition, Southampton Children’s Hospital

Read profile

Jane Seymour Service Manager, SEN and Disabled Children’s Service, West Berkshire Council

Read profile


Venue details

Central London - Westminster Central London - Westminster

Westminster Insight

Tel: 0845 647 9000
Email: info@westminsterinsight.com

1 Northumberland Avenue, London, WC2N 5BW

The Knowledge Exchange Group Ltd

Registered Company No.08808447

Registered Office
1 Northumberland Avenue, London, WC2N 5BW, Registered in England and Wales.

Westminster Insight is a division of The Knowledge Exchange Group Ltd (08808447)
©2018 Westminster Insight. All rights reserved

Speakers
X Close